Monday reads like a tail of two cities. Around lunch time Karen and I headed into my work place to see staff and thank them for all the things they have done thus far. We were so surprised to see that there were even more gifts for us. We were presented with a beautiful gift basket of Christmas goodies and also some pre loaded visa cards. The multiple call centres in my building for the month of December had been running fund raises for us and we were again totally overwhelmed with the generosity of our Telstra family. I will not mention the amount raised as I am a little embarrassed by the amount, but I can say what ever amount you might be thinking, you are not even close. THANK YOU Telstra family.
We then left work for the treatment at the RAH that afternoon. By the time Karen and I got to Oncology Karen was not well at all. She had the shakes, a temperature and extreme pain in the mouth and skin around the neck. The on duty oncologist reviewed her and it was decided she was not well enough to have treatment that day. We then spent the next hour there in the nurses station being cared for and cleaned up. They gently and meticulously removed as much of damaged skin and cleaned the raw skin and applied the purple stuff to dry and protect the effected area. We were boarder line being admitted as inpatients that night, but managed to plead our way out of it. Fortunately her temperature was back to normal by the morning. Tuesday begins.
Tuesday was the worst day of this whole process by far. To complicate our already complicated routine, Nate was booked in for day surgery to rectify mild Hypospadia that he was born with. (I won't go into the details of the condition so feel free to google it). So I was at the Memorial Hospital from 7.00am and Karen was doing her regular RAH shuffle with her Dad in tow that morning as well. This time Karen's treatment did go ahead with the prospect of trying to get through to the end of this week with perhaps another rest day on Monday. With Christmas and Boxing Day break, this would give her a 5 day break. These days are not lost, but will be added onto what was the end date of 28th of December. Poor Nate was in a bad way and was in consolable for the most part. So last night was a long sleepless one while we attended to him about every 2 hours. He is asleep now and hopefully feeling a bit better than yesterday. Absolutely heart breaking to see him in so much pain and not be able to do anything for him. So lots of tears in our house yesterday. We both really feel like we have hit rock bottom. Surely things cant get any worse.
Mondays pictures are a little gross, but it is what it is.
No comments:
Post a Comment